Gage's Story, 48 Syndrome

Well since my last post, Gage has gotten tubes in his ears - which went off without a hitch.  He is also pulling up like a champ.  He pulls up on anything that will stand still long enough - including the dogs.  Gage is into everything, which I am so not use too!!  He likes to turn off the computer while I am on it.  I'll be typing and all of the sudden, Internet Explorer shuts down and windows logs me out and then black screen.  I look down and Gage's little round face is just cheesing at me.  He has also learned the word "hi" and the proper use for it.  Whenever we go some where, Gage greets all that walk by us.  It's pretty cute!  I have also recently joined a yahoo group, that has other mothers of 48 children and some people actually dealing with some variation of this syndrome.  I found out that there are two different conferences this summer for x, y chromosome disorders.  Not sure yet if we can go - it's pretty expensive.  There are a couple of other mothers I have been speaking to, and it's nice.  They know exactly what I'm up against.  I want to say thank you again, to everyone that has given me encouragement and supported me and my family.  All the comments on this website and facebook, have been amazing, and I appreciate them so much! 

Well, I just created this site. I am excited - it was a goal of mine as soon as I found out Gage's diagnosis.  I will post updates of Gage's progress and new things I discover along our journey!  Thank you all for the support!!